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Having MS is hard enough; it shouldn’t be made harder by a welfare system that doesn’t make sense,” she added.

Earlier this year, the charity highlighted at least £6m a year has been taken from people with MS since the introduction of PIP.

“I woke up one day and couldn’t see anything,” recalls Aliie Harpham, who discovered she had multiple sclerosis (MS) last year.

Aliie didn’t appeal the DWP’s refusal of her case after finding out the outcome of her assessment, saying she was too upset to try again straight away.

Sometimes she wakes up with involuntary eye movement so severe that she can’t even walk to the toilet.

“Living with MS, there are all these little things that normal, healthy people don’t experience but that become a daily thing for us,” she tells “It’s now just second nature for me to carry heavier things in my right hand.

The 26-year-old is one of 4,100 people with the condition who were refused personal independence payment (PIP) last year, amounting to nearly a third of all MS sufferers who applied for the benefit.

Figures obtained though Freedom of Information requests show 31 per cent of new claims from people with MS between April 2013 and April 2017 were found to be “disallowed”.


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